Impact of parent organizations in Duchenne muscular dystrophy research: maternal activism as a driver of change

Authors

  • Julia Fokkema Asociación de Distrofia Mus- cular de Occidente, A.C.
  • Samuel López-Hernández Asociación de Distrofia Muscular de Occidente, A.C.
  • Luz Berenice López-Hernández División de Investigación Clínica. Subdirección de Enseñanza e Investigación, Centro Médico Nacional 20 de Noviembre, Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado, México, D.F.

Keywords:

Duchenne muscular dystrophy, organization of parents of children with DMD, Asociación de Distrofia Muscular de Occidente

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References

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Published

2026-04-08

How to Cite

1.
Fokkema J, López-Hernández S, López-Hernández LB. Impact of parent organizations in Duchenne muscular dystrophy research: maternal activism as a driver of change. Invest. Discapacidad [Internet]. 2026 Apr. 8 [cited 2026 Apr. 8];2(3):135-40. Available from: https://dsm.inr.gob.mx/indiscap/index.php/INDISCAP/article/view/940

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