Development of the Spanish version of the Barry-Albright Dystonia Scale: translation, cross-cultural adaptation and determination of reliability and validity of content in Mexican patients with dyskinetic cerebral palsy. Pilot study
DOI:
https://doi.org/10.35366/113826Keywords:
dyskinetic cerebral palsy,, dystonia, Barry-Albright Dystonia scale, translation, Mexican patientsAbstract
Introduction: dystonia is an abnormal pattern of posture and/or involuntary, uncontrolled, recurrent, occasionally stereotyped movement. Barry-Albright Dystonia Scale (BADS) is one of the most useful clinical tools to measure dystonia in children with cerebral palsy. There is no Spanish version of a scale that measures dystonia. Objective: to develop the Spanish Barry-Albright Dystonia Scale (BADS) and evaluate the inter and intrarater reliability of the scale and to measure its validity in the Mexican population with dyskinetic cerebral palsy. Material and methods: we developed the Spanish version of the BADS for children with dyskinetic cerebral palsy in the Mexican population by the forward and backward translation procedure and testing for acceptability and the clarity of item wording so that the scale could be used by Spanish-speaking examiners. The studies included the validity of content (using Delphi method by a panel of experts), inter and intrarater reliability which were examined by 2 raters in 30 videos of patients with dyskinetic cerebral palsy twice on two occasions using the spanish BADS. Results: the intrarater and interrater reliability was very good for the Spanish BADS (Pearson correlation coefficient > 0.90) with a statistically significant agreement between raters and within raters (all p < 0.001), the scale also translated into Spanish, obtained a high content validity index (I-CI 0.82-0.94). Conclusions: the spanish version of the Barry-Albright Dystonia Scale showed high content value, as well as adequate inter and intrarater reliability. The scale constitutes an understandable, viable, simple and useful instrument.
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